Lupus Foundation of America - Lupus In The News

Snoop Dogg on the View

oneangrygnome — 2010-08-06T21:09:46 -05.00

http://abc.go.com/watch/the-vi.../VD5579269/the-view-86

LATEST ON BENLYSTA

Lupus444 — 2010-07-20T17:02:41 -05.00

Benlysta

I am still hoping this will prove beneficial.

Recent article in the Times

justmarti — 2010-07-15T15:30:23 -05.00

Uncovering the Mysteries of Immunity and of Lupus..

Hello

Teresa4 — 2010-07-09T20:01:49 -05.00

Just wanted to introduce myself from TN and say Hi to everyone Teresa

Missing Woman with Lupus found

Lupus444 — 2010-06-23T11:21:09 -05.00

Missing woman with Lupus found

What's in a song...?

Diva — 2010-06-08T21:55:34 -05.00

I have loved this song from the first time I heard it. It's never been said that this song is about Lupus.... And without even knowing about his wife at first, I thought to myself...."This song is it. It is about US" Just makes me think of different stages of wondering, waiting, learning, fighting....

*******************************************

Someday. Rob Thomas....

You can go
You can start all over again
You can try to find a way to make another day go by
You can hide
Hold all your feelings inside
You can try to carry on when all you wanna do is cry

And maybe someday we'll figure all this out
Try to put an end to all our doubt
Try to find a way to make things better now that
Maybe someday we'll live our lives out loud
We'll be better off somehow, someday

Now we wait
And try to find another mistake
If you throw it all away then maybe you can change your mind
You can run
And when everything is over and done
You can shine a little light on everything around you
Man it's good to be someone

And maybe someday we'll figure all this out
Try to put an end to all our doubt
Try to find a way to make things better now that
Maybe someday we'll live our lives out loud
We'll be better off somehow, someday

I don't wanna wait
I just wanna know
I just wanna hear you tell me so
Give it to me straight
Tell it to me slow

Cuz maybe someday we'll figure all this out
We'll put an end to all our doubt
Try to find a way to just to feel better now
Maybe someday we'll live our lives out loud
We'll be better off somehow, someday

Cuz sometimes we don't really notice
Just how good it can get
So maybe we should start all over
Start all over, again

Cuz sometimes we don't really notice
Just how good it can get
So maybe we should start all over
Start all over, again

************************************************

The Dr's

jcebp — 2010-06-02T11:40:43 -05.00

My nephew just told me that today on the Dr's they talked about Lupus! Baby steps!!

http://www.thedoctorstv.com/main/show synopsis/517?section=synopsis

I can never get the links to work!!

Take care

Carolyn

Lady Gaga and Lupus

cmlewis1977 — 2010-05-24T17:44:04 -05.00

Hmm, the article is about Lady Gaga and talks about her Aunt Joanne that died from Lupus and she sort of states she has lupus...not sure because she doesn't say it outright.

http://entertainment.timesonline.co.uk/tol/arts_and_entertainment/music/article7129672.ece

Lady Gaga hints she has Lupus

Mccloud63 — 2010-05-23T10:18:21 -05.00

I was just reading an article on Lady Gaga and she said her Aunt died of lupus and she sort of hints she may have it. Hmmmm... It is on the Huffington post .

Miss america pagent

tadpol — 2010-05-17T00:07:16 -05.00

Ms. OK in her interview said that she wqas "cured" from Lupus, not in remission but actually cured. I was very fristrated and I could not believe she said that on national tv.

What are your thoughts? I could not find the link on the internet, sorry!

Butterfly Gala For Lupus!

Lupus444 — 2010-05-13T10:34:39 -05.00

Butterfly Lupus Gala in DC

Here are some pics!

still trying

bipolartony — 2010-04-27T12:33:41 -05.00

i have contacted dr phil to be a guest for lupus....wish me luck

MMR Information Systems Inks Deal with China-Based Health Care Provider

Lupus444 — 2010-04-27T07:32:23 -05.00

Information system

nbc n lupus finally

bipolartony — 2010-04-25T23:42:04 -05.00

http://www.nbcnewyork.com/stat...a_Cause__New_York.html

jon stewart

bipolartony — 2010-04-24T23:28:04 -05.00

wrote an email to jon and told him i didnt appreciate his comment on lupus and that he can go #$@! himself!

Human Genome Sciences: Tests Raise Questions About New Lupus Drug

Lupus444 — 2010-04-24T07:17:16 -05.00

Link

Latest Benlysta findings not promising....

Lupus444 — 2010-04-21T09:48:49 -05.00

Link

Very disappointed about the latest on Benlysta.

Symposium ; 36th Annual meeting of the Lupus Foundation New England

luna02 — 2010-04-17T02:15:43 -05.00

http://www.lupusne.org/workshop_descriptions_2010.htm Check out the link, anyone interested. -------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------------- SESSION I (choose one) The Basics of Lupus This session is for people who have been newly diagnosed, those who have lived with the disease for just a short while, or those who just want to understand how lupus affects the body. The format includes a clear explanation in lay terms of the systemic nature of lupus and an opportunity to ask questions. Presenter: Ingrid B. Avalos, MD, Rheumatologist, Beth Israel Deaconess Medical Center, Boston Kidney Disease in Lupus Learn about the symptoms and treatments for kidney disease in lupus. Presenter: Manish Maski, MD, nephrologist Beth Israel Deaconess Medical Center, Boston Cognitive and Neurological Symptoms There are many ways in which lupus can affect the nervous system. Learn about symptoms and available interventions. Presenter: Sharam Khoshbin, MD, Neurologists Brigham and Women's Hospital, Boston 10:45 - 11:45 AM SESSION II (choose one) Lupus Heart Connection Coronary artery disease is far more common in people with lupus than in the general population. The increased risk is thought to be due to increased frequencies of the known risk factors for heart disease and the treatment of lupus which worsens many of these risk factors. In addition, the lupus-specific causes of increased coronary artery disease will be discussed. Presenter: Sukran Ergin, MD, Rheumatologist, Beth Israel Deaconess Medical Center, Boston Skin and Lupus The skin is one of the most common systems affected by lupus. Learn about the broad spectrum of skin manifestations and treatment options. Presenter: Siobhan M. Mannion, MD, Dermatologist Lahey Clinic Medical Center, Burlington Lupus Eye Disease This lecture examines the various eye disorders that are caused by lupus and also by some of the medications used to treat lupus, s.a. Plaquenil and Steroids. Presenter: Richard Strecker, MD, Ophthalmologist Strecker Eye Center, South Shore and Cape Cod 12:00 - 2:00 PM Luncheon and 36th Annual Meeting Lupus Foundation New England Annual Meeting of the Membership Installation of the Board of Trustees Annual Awards Ceremony Keynote address Keynote Speaker Dr. Steve Sobel Keynote address: "You're a Piece of Work! Celebrate, Joy, Passion and Influence" Dr. Steve Sobel, nationally adored motivator, educator and author will tickle your "funny bone", support your "backbone" and inspire your "wishbone" as you will realize the tremendous effect you have on people and how special the "gifts" are that you bring everyday with your commitment and passion, even during times of great change and life's inevitable curveballs. 2:00 - 3:00 PM SESSION III Panel of Experts/Questions and Answer session Moderator: Lisa M. Fitzgerald, MD, Rheumatologist Beth Israel Deaconess Medical Center, Boston Luna02

Trouble obtaining Life insurance coverage.

yoursandtruely — 2010-04-12T18:50:35 -05.00

Hello , I am a 26 year old wife and mother of two baby girls. Like any new family we've tried to obtain insurance coverage for our family. However, I have been denied by two companies because of my Lupus. Does anyone know of any companies that are willing to insure a Lupus patient?

Group targets autoimmune diseases

debartolo — 2010-03-25T21:18:21 -05.00

NEW STRATEGIES

Doctors often treat symptoms of autoimmune diseases with anti-inflammatories or immunosuppressants, which DiPaolo describes as a blanket way to modify disease.

"From a basic research point of view, if we can understand the whys and hows, we can come up with new strategies to turn the immune system off or stop it as it relates to attacking the body," he said. The tricky part though, he said, is that turning it off altogether leaves the body vulnerable to viruses and bacteria."

Regulatory T cells are the immune system's way of controlling inflammation and preventing the development of various autoimmune diseases. Studies have shown that they can prevent rheumatoid arthritis if given before the disease process begins.

T cells that are part of the arthritic immune system are isolated, their genetic programming is switched so they suppress immunity only against the disease in the affected part of the body. Then, when they're reintroduced to the body, they suppress the immune system only in that spot, leaving the rest of the body's immune system to respond normally.

"It's a highly targeted immunosuppression rather than a global immunosuppression," he said. Now he's trying to figure out how to get the T cells to do the same thing after rheumatoid arthritis has started.

The potential for regulatory T cells is so great, DiPaolo said, that they're being tested in a lot of autoimmune diseases. But, inflammation in one organ is different than it is in another. So while regulatory T cells might be effective in stopping the joints from swelling in arthritis patients, that might not be the case for diabetic patients who have inflammation in the pancreas.

"Each specific (autoimmune) disease is caused by a completely different reason," he said.

ST. LOUIS POST-DISPATCH

Team Life Without Lupus

Lupus444 — 2010-03-20T15:21:04 -05.00

Link

There are marked disparities in SLE rates worldwide

debartolo — 2010-03-10T08:32:18 -05.00

things learned en-route to looking up other thins ...

The incidence and prevalence of SLE varies considerably across the countries. The burden of the disease is considerably elevated among non-white racial groups. There is a trend towards higher incidence and prevalence of SLE in Europe and Australia compared to the USA. In Europe, the highest prevalence was reported in Sweden, Iceland and Spain.

study abstract...

can't help but think if this were a disease that mainly effected caucasian men in northern europe would be a bit further along in research/treatment ...

Current & Former Divas 'Get Lucky for Lupus'

debartolo — 2010-02-27T19:16:56 -05.00

The current generation of Divas bumped into the former generation last night in Hollywood when The Bella Twins and Torrie Wilson attended the same event. The trio of Divas aided lupus sufferers at a 'Get Lucky for Lupus' charity poker event.

diva-dirt.com

New Clues to Lupus' Link With Heart Disease

debartolo — 2010-02-26T17:35:33 -05.00

FRIDAY, Feb. 26 (HealthDay News) -- An increase in certain types of immune system antibodies may contribute to the development of heart disease in people with active lupus, a new study finds.

In this study, Australian and British researchers found that patients with active lupus had significantly increased levels of autoantibodies to fat-binding proteins than those with less active disease. The increase in these proteins -- anti-apolipoprotein (anti-Apo A-I), anti-high-density lipoprotein (anti-HDL) and anti-C-reactive protein (anti-CRP) -- may contribute to the development of atherosclerosis (hardening of the arteries) and increase the risk of cardiovascular disease.

The study appears in the March issue of the journal Arthritis & Rheumatism.
businessweek.com

also,

Individuals who suffer from Lupus, a chronic inflammatory disease, may want to adopt an alkaline diet, which is high in fruits, vegetables and whole grains, as a new study suggests that they may be at a higher risk for developing cardiovascular disease.

better health research ... funky source, but still true.

LFA's 2010 Advocacy Day

debartolo — 2010-02-17T22:44:23 -05.00

LFA's 2010 Advocacy Day

Washington, DC

March 15-16, 2010

Join the Lupus Foundation of America and lupus advocates on Capitol Hill to educate Members of Congress about lupus and encourage them to support more funding for lupus research.

~~~ anyone on the board planning on attending?

Julian Lennon and James Scott Cook Raise Awareness and Funds for Lupus Research

LFAModerator — 2009-11-30T13:41:28 -05.00

Wanted to share this with people.

Proceeds from the song, "LUCY," will be donated to the Lupus Foundation of America and the St. Thomas Lupus Trust

the LFA Moderator